Skip to main content

Craig On A Leash?!?!?

On A Leash

Friday, July 29, 2022

9:45 PM

 

“Can you imagine Craig on a leash?” said Mary on the phone to her daughter. “OMG! Craig on leash,” was the response, followed by, “Need out?”.

 

And if you are one who knows me well, how would you answer that question? Please share in the comments.

 

The leash of course is the soft plastic tubing that blows life-giving oxygen into my nostrils direct from the concentrator. Apparently, I have been given extra tubing to make it longer; it’s now 32 feet in all. It’s still a leash. I now have this oxygen snake following me around everywhere. Murphy’s Law of Oxygen Tubing says, “If it can get caught or tangled on something, it will.” with the corollary, “No matter which way you turn, the tubing will twist the opposite way”.

 

I’ve learned new skills. Like a sailor with a rope, I can now take that tubing, whip it along its length, and untangle it from almost anything, all the while humming, “whip it, whip it good”. I can snap it and make it jump over a chair or climb up on my bed.

 

I was even able to very, very slowly do the first 17 tai chi moves outside on the deck still tethered by tubing to the concentrator. Being fed oxygen meant I wasn’t as breathless. Small accomplishments seem so grand these days.

 

We had to go into Montague for some supplies. We hooked me up to an oxygen tank and put it in the back seat of the car threading the tubing and nose piece between the seats. I drove for the first time in almost two weeks. It was liberating.

 

Wearing the tubing 24/7 causes some irritation. The tubing goes over my ears and with movement it rubs against the skin. Same thing with the nose piece. I was given a nasal gel in the hospital. It helps. As my lungs heal, I can take the tubing off for short periods of time and it gives my nose and ears a break. I’m not wearing the tubing as I write this. It is interesting how quickly I have adapted to this aid. There have even been a few brief moments when I forgot I was wearing this.

 

There is a constant quiet noise with the oxygen being blown out the nose piece. Sometimes it sounds like shush and other times like hiss. When I take a drink of water, the hissing echoes in the glass making it sound like I am drinking something carbonated.

 

I have a couple of tanks for emergencies. If we were to lose power, within a few minutes, I would have to switch over to a tank.

 

I very much hope the home oxygen folks can rig something up so I could have a portable oxygen supply. I’d like to go for a walk instead of pacing back and forth on the deck like Captain Bligh. I get my steps in and I can feel my legs getting some of their strength back, but a good walk would help more, both physically and mentally.

 

 

Comments

Popular posts from this blog

Counting

  It’s feels strange to be counting the rest of my life in weeks and days and curling games on TV. While we haven’t finalized the date for MAiD we are aiming for early November. Some examples… Last week, confirmation of my cataract surgery arrived by mail with a date later in November. Nope. I won’t be here for that. A couple of days ago, a friend and former colleague dropped off some cookies and stayed for a brief visit. She said she would be out of province for about six weeks. As she was leaving, she said she would see me later. Nope. I won’t be here when you get back. The other evening I was asked why I was staying up so late. I replied that I was watching a women’s curling game and for me there were just a few games left in my life to watch so I was staying up. And all of a sudden it doesn’t feel as if there is enough time to make sure all the other things are looked after. One major item has been checked off the list: organizing and pre-paying for cremation. All I needed was ...

After the Transplant Doctor Consultation

Last Friday started sunny and calm outside. Inside, another story. Getting out of bed is very difficult most days. It takes a lot of energy and oxygen to get myself going. This morning I found myself in a coughing loop. The more I coughed, the lower my blood oxygen level dropped. Coughing is physically exhausting. After being unable to stop coughing, I switched from the concentrator to a tank of oxygen which gives me purer O2 and helps break the coughing loop. It worked, but I had used a lot of physical energy. I only have so much and I needed to save some for my meeting with a doctor from the transplant team at Toronto General Hospital. The meeting started late because the video conferencing app Microsoft Teams didn’t work. [surprise, surprise; btw I hate MS Teams] We finally got the audio portion working, but the doctor could not see us. We could see her and we could hear each other. The first 30 minutes or so was the doctor exploring my health history. I’m getting very good at telli...

How Are You Doing Anyways?

Fewer than three weeks away from the end of my life and I’m asking myself how am I doing.   As I am trying to live in the moment as much as is possible, I can say I’m doing alright. I can’t help myself when my mind wanders to contemplate that just after four in the afternoon in early November there will be no more me. In this brain which is always crackling with thought energy there will be nothing. An emptiness. It’s hard to wrap my head around it.   I think this is how and why some find comfort in the concept of an afterlife. They say to themselves, “surely this can’t be it“. But I think it is. We have one chance at life and if there is something after, it’s not who we were, if that makes sense. I can also see why people believe in miracles. They hope and hope that something supernatural will occur and magically they will be cured or returned to a previous state of better health.   I’m not frightened of what will be coming. In many ways, the end will be a relief. No mor...