Skip to main content

Discharged

Discharged

Tuesday, September 6, 2022

9:28 PM

 

Today, I had to return to the hospital for several reasons. The most important was to be officially discharged. I also had to undergo some tests, which are required as part of the process when applying for a lung transplant.

 

Mary and I arrived almost in time for the Nuclear Medicine Myocardial Perfusion Stress Test, but apparently someone had cancelled it. So we headed back to Unit 2 where I am still a patient. This particular test involved some considerable sacrifice: fasting 4 hours before and no caffeine for 48 hours. One of the nurses on Unit 2 asked if I wanted some breakfast and given how hungry I was, my answer was, definitely. The tray arrived and I was about to dive in when another nurse came around the corner like Kramer entering a room and yelled, “Don’t eat!” I stopped the spoon midway to my mouth. The test had been res-scheduled. Not another minute later, yet another nurse came in and told me it was ok to eat. The test would be sometime later. And before I could get the cornflakes up to my mouth, the first nurse was back with a ‘don’t eat’ tone in her voice because I would be going for the test within the hour. If I hadn’t been half starved it might have been funny. I was wheelchaired down to the test area within that very hour.

 

For the test, I was injected with a microscopic amount of radioactive material and then had to go through about a half an hour of being scanned by a couple of different devices.  In layman’s terms, they track the radioactive material through the body to measure how the heart is working. I have to go back tomorrow morning for a follow-up test. In the meantime, no coffee, no tea, no chocolate, no carbonated beverages (the thrill is gone).

 

After that we returned to Unit 2 in room 222 in bed 2 for a meeting with the doctor. She was considering discharging me, but given I had a walking/breathing test booked for 3:00 PM, she decided to wait to save me having to go through the whole registering-at-the-hospital routine. This turned out to be one of the best decisions of the day.

 

Just before 3:00, Carol the Porter came to collect me. I don’t know if you’re aware that there is a whole team of porters whose job is to shuttle patients throughout the hospital. I got into the wheelchair, Carol hooked up an oxygen tank, and away we went. I think it’s the fastest I’ve moved in a month. The walking/breathing test is simple. You walk up and down a hallway for six minutes. The side of the hallway has tiny orange pylons every 15 metres. I did better than I expected and was able to walk just over 60 metres. That performance speaks to how weak I have become and how difficult it is to get enough oxygen when active.

 

Once that test was completed, it was back to Unit 2 to meet wth the doctor again. After some discussions around home oxygen, some additional prescriptions, the importance for my mental health to be at home, the doctor officially discharged me. The hospitalist working with me through all this has been wonderful; she is compassionate, knowledgeable, professional, patient-centred.

 

We have reached the point where I can’t be left home alone. There have been many times in my life when I should never have been left alone or worse in charge, but in this case it’s a matter my survival. I need help with almost everything, but the most important is receiving a steady supply of oxygen. If there is a power failure or should the oxygen concentrator stop, I need to switch quickly to an oxygen tank; something I’d need help with. I’m also not driving anymore.

 

On the upside, with Scott here, we’ve played many games of backgammon and cribbage in the last few days. Neither of us has had people we can play with, so this is a real treat.

Comments

Popular posts from this blog

Counting

  It’s feels strange to be counting the rest of my life in weeks and days and curling games on TV. While we haven’t finalized the date for MAiD we are aiming for early November. Some examples… Last week, confirmation of my cataract surgery arrived by mail with a date later in November. Nope. I won’t be here for that. A couple of days ago, a friend and former colleague dropped off some cookies and stayed for a brief visit. She said she would be out of province for about six weeks. As she was leaving, she said she would see me later. Nope. I won’t be here when you get back. The other evening I was asked why I was staying up so late. I replied that I was watching a women’s curling game and for me there were just a few games left in my life to watch so I was staying up. And all of a sudden it doesn’t feel as if there is enough time to make sure all the other things are looked after. One major item has been checked off the list: organizing and pre-paying for cremation. All I needed was for

How Are You Doing Anyways?

Fewer than three weeks away from the end of my life and I’m asking myself how am I doing.   As I am trying to live in the moment as much as is possible, I can say I’m doing alright. I can’t help myself when my mind wanders to contemplate that just after four in the afternoon in early November there will be no more me. In this brain which is always crackling with thought energy there will be nothing. An emptiness. It’s hard to wrap my head around it.   I think this is how and why some find comfort in the concept of an afterlife. They say to themselves, “surely this can’t be it“. But I think it is. We have one chance at life and if there is something after, it’s not who we were, if that makes sense. I can also see why people believe in miracles. They hope and hope that something supernatural will occur and magically they will be cured or returned to a previous state of better health.   I’m not frightened of what will be coming. In many ways, the end will be a relief. No more desperate ga

Letter from a friend

This note came from a friend via Messenger: Hi Craig, I have been meaning to write to you yet struggling to find the words. I have been following your journey closely and my admiration for you continues to grow. So I finally decided to just write, thinking the words would come. Somehow, they still fail me but I'll do my best. When I moved to Canada almost two decades ago, you were among the first people I met. I visited you at CBC where you gave me a tour and chatted with me about my dreams of someday working in radio. You told me about college programs, made calls, helped me apply. And thus, the trajectory of my Canadian adventure changed. It turned into my Canadian life instead. So many wonderful things happened to me, so many great friendships, some of the very best in fact, were formed as a direct result of meeting you. Throughout the next couple of decades, our paths would continue to cross regularly, most consistently at Starbucks. It was always so great to see you come in on